I joined a national patient group in Parliament on 7th November to call on the Government and regulators to introduce a national standard of care for patients with Ankylosing Spondylitis.
The call to action formed part of the National Ankylosing Spondylitis Society’s (NASS) ‘AS it is’ campaign. As a condition that is widely known to be painful and has the ability to lead to substantial disability and restriction, it is vital that patients get all the support they need to deal with Ankylosing Spondylitis.
I was shocked to hear that AS patients are waiting on average 8.5 years until diagnosis, particularly since this condition can have a huge impact on a young person’s education and career, with knock-on consequences on everything from a person’s mental health to their financial situation.
On behalf of people in my constituency living with AS, and indeed AS patients all over the UK, I welcome NASS’s ‘AS it is’ campaign and the call to action for a national standard of care for spondyloarthritis, which should go some way to improving this situation.